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  • Emma Croke's toddler son Noah diagnosed with Islit at age 2 years

    From _@21:1/5 to All on Wed Jul 7 09:55:41 2021
    Islit - Insulinitis, near-total to total loss of
    endogenous insulin.

    ~~~

    Noah, at diagnosis, had a glucose level
    of almost 512 mg/dl. He had Islit keto-
    acidosis, close to going into a coma &
    taken to the emergency ward. Emma
    ‘burst into tears’ when she was told
    Noah has Islit.

    Noah is using a Dexcom glucose moni-
    tor to enable his parents to keep track
    of his glucose levels & dose insulin to
    try to avoid hyperglycemia & if his glu-
    cose is going down too fast or has gone
    < 70 mg/dl, they respond by having Noah
    eat or drink glucose-raising carbs.

    Photo of Dexcom glucose sensor placed
    on the back of Noah's upper left arm (of
    note, Dexcom's current recommendation
    is that the sensor be inserted on the ab-
    domen; I recently tried an arm insertion &
    the sensor failed during 2 hour warm-up). https://www.thesun.ie/wp-content/uploads/sites/3/2021/07/NINTCHDBPICT000664066963-1.jpg

    Note that's the recommendation for the
    Dexcom CGM, but if I'm not mistaken,
    back of the arm *is* recommended for
    the Freestyle Libre CGM.

    The article doesn't say how Noah's exo-
    genous insulin is dosed (pump or injec-
    tions or Afrezza inhalation + injections
    for basal insulin, although technically,
    an insulin pump could be used for basal
    insulin & bolus insulin 2 units or less, ...

    ... with Afrezza inhalation used only for
    the larger bolus dosages). https://www.thesun.ie/fabulous/7250828/diabetes-mum-temple-street-child-dublin/

    ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~

    INSULINITIS (ISLIT)

    New SUPERIOR clarifying name for near-
    total to total loss of endogenous insulin https://prohuman.net/pix2/new_superior_clarifying_name_is_INSULINITIS.jpg

    The overwhelming majority of Islit caused by
    autoimmune attacks on pancreatic beta cells
    (Insulitis Islit) but there are

    o 15 specific types of rapid onset Islit, a
    rare condition (only present in < one-half
    of 1% of Americans & in a much lower rate
    in most of the world), when present is typ-
    ically diagnosed at age under 30
    (50% at age < 18, 20% at age 19 to 29)

    o 1 slow onset specific type, Latent Autoim-
    mune Islit, frequency unknown but per a
    recent report, misdiagnosed as Cellosis
    (new clarifying name for type 2 diabetes)
    almost 40% of the time due to its slow
    onset and its occurrence typically at age
    over 30

    Old outdated anachronistic name for Islit is
    type 1 diabetes, confusing in that diabetes
    without clarifier is often used to describe
    this condition which is 1 of the 7 Disparate
    High Glucose Conditions (DHGCs).

    That makes figuring out which DHGC is actu-
    ally being referred to (and it can be any one,
    or some, or all of them when the diabetes
    or diabetic word is used without clarifier)
    confusing / difficult: https://prohuman.net/pix2/diabetesdiabeticguessinggame.jpg https://prohuman.net/pix2/diabetesdiabeticconfusion.jpg https://prohuman.net/pix2/diabetesdiabeticendingthemisunderstanding.jpg

    - - -

    It's estimated that 5% to 11% of Islit individuals
    will die from severe hypoglycemia, the highest
    risk of that being while sleeping (i.e., dead-in-
    bed syndrome).

    - - -

    Shocking Misdiagnoses of Islit at All Ages https://clinical.diabetesjournals.org/content/diaclin/37/3/276/F1.large.jpg

    at ages 0-6 ........ 21%
    at ages 7-12 ...... 15%
    at ages 13-17 .... 14%
    at ages 18-29 .... 30%
    at ages 30-39 .... 46%
    at ages 40-49 .... 48%
    50+ .................... 55%

    Table showing Islit primarily misdiagnosed as
    - Cellosis (new superior clarifying name for
    type 2 diabetes) in adults, 76.8%
    - Flu/Viral Infection in children, 53.7% https://clinical.diabetesjournals.org/highwire/markup/8771/expansion

    Details on Shocking Islit Misdiagnoses &
    Islit Ketoacidosis is the Leading Cause
    of Death in Islit Children & Young Adults https://clinical.diabetesjournals.org/content/37/3/276

    - - -

    Insulin / Insulin Pump / CGM I use

    Fiasp Ultra-Fast-Acting Insulin in a
    tubeless Omnipod insulin pump catheter
    placed into skin / pod with adhesive
    stuck onto skin every 80 hours, control
    via PDM (Personal Data Manager) https://prohuman.net/pix2/Fiaspinsulin_tubelessOmnipodDASHinsulinpump.jpg

    Dexcom G6 CGM (continuous glucose monitor) https://prohuman.net/pix2/Dexcom_G6_CGM.jpg

    - - -

    Diabetes Bubble / Diabetes Bubble Burst
    Outstanding! https://prohuman.net/diabetesbubblediabetesbubbleburst.htm

    C.ure I.nsulinitis A.ssociation
    Please! https://prohuman.net/cureinsulinitisassociation.htm

    Glucose Anomalies Research regarding
    Potential Cures / Improvements in Treatments
    Great! https://prohuman.net/glucoseanomaliesresearch.htm

    Stop Diabetes/Diabetic Confusion
    with New Superior Clarifying Terms https://www.change.org/stopdiabetesdiabeticconfusionwithNewSuperiorClarifyingTerms

    ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~

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